The last time Alyssa has had arsenic was Thursday. Everyday since Thursday her QTC numbers have been too high. We think that Friday was calculated wrong. When she doesn't get it for the day her number has go below 460 and it has never gone below that. Alyssa was upset on Friday but more on Monday.
When we went in today the number was still too high. She was having her bone marrow biopsy today so we talked to the doctor. We asked if it is really beneficial to have the last 3 doses. Right now it has been 6 days since she has had any. The doctor said that she was fully prepared to tell us that we needed to complete all the doses. After talking to us she doesn't know what to do. There is a tumor board meeting tomorrow and they are going to discuss Alyssa's case. After all the doctors talk it out they are going to call us and let us know what the plan is. We told them that we are going to do what they want us to do but I was just concerned for Alyssa's mental state.
Why does this treatment have to be different all the time?????? I guess we will see tomorrow what the next step is. The biopsy results will take a week to get back. They are planning on the harvesting of the bone marrow on March 24th if the results are negative from the bone marrow.
Dear Alyssa:
ReplyDeleteConsidering everything you have gone through, you can do these last few days standing on your head. Keep your eyes on the goal line girl, I know you can do it.
Sending you all my best vibes {&^%$#@!#$%^&*}
See you Wednesday, M.M.