Another day that has been busy

Alyssa didn't sleep very well last night.  I felt so bad for her she just couldn't get comfortable.  They stopped the medicine that takes all of her fluid out of her body.  The reason they do this is because she is not having so much fluid going in and they want her body to try to do it on its own.  She was coughing a lot and she was getting filled with fluid.  She actually asked for the c pack mask last night.  They don't like her to be on that all the time because it breathes for her and she doesn't have to work at breathing.

She awoke pretty scared and I told her that it was good she was coughing because that was good for lungs.  Her eyes were all puffy.  She asked if Grandpa could come and give her a blessing.  I called and my parents came running.  She had a blessing and they gave her some medicine to try to relax her.  She finally went to sleep.

I was pretty tired so I went back to the hotel and got some sleep.  When I woke up I texted my mom and she said that she was doing great.  They had given her a little bit of medicine to get rid of the fluid in her system.  She was eating mac & cheese, carrots, 2 cartons of choc. milk and chocolate pudding.   I guess there was some discussion about her not eating.  They didn't have what she ate yesterday.  My mom straightened them out on that.  We were just leaving the hotel and my mom said come now they are taking her down to have another mri.  We ran over to the hospital.  We got there just in time to say good bye and we loved her.  Mom said that the respiratory therapsit and the nurse were trying to figure out how to take the oxygen into the mri.  The respiratory therapist came up with an adjustment so she could take it in with her.  It reminded me of Apollo 13 when they had to use different things to bring them home.

She got back from the MRI and she was a little sedated.  While she was sleeping my Dad and I went and inquired about hospital housing.  They gave me a room that is right across from the hospital.  It is not the hilton but it has a bed and a shower.  I am so grateful that I can go over there and get some rest and have a shower.  I will still stay here at night but I will go over sometime during the day.  Alyssa told me she doesn't like it when I leave but I told her I need to take care of me in order to take care of her.

I think we have her schooling and apartment taken care of so now we are set on those things.  Kirk called and said that his boss has no problem working remotely temporarily.   Permanently he is going to have to check on it.  I am so excited that he will be able to come back.  The hospital housing will be nice for him to.  Hopefully the housing has internet so he could work some over there. 

We don't have the results back from the MRI yet.  Most of the results have come back from the spinal tap.  And they are all negative.  The nurse did say that they are sending something to California to test it.  It amazes me what they can do with a little fluid from our bodies

Alyssa had a great dinner.  She had a whole bowl of potatoe soup, green beans, banana, grape juice and custard.  She ate everything except for a few green beans and she is going to finish the custard later to night.  She is resting comfortably and watching How the Grinch stole Christmas.  We are trying to keep her awake until around 9 so maybe she will get a good night's sleep.

She seems to get more and more each day back of her mobility.  She can mover her arms better and she seems to be more coherent.  Hopefully that will continue and she climb the next mountain.  I am so proud of her.  She has been so brave for all the things that she has had to go through.  She has a lot of faith.