Alyssa started getting a rash last night on her chest, armpits and face. The nurse gave her some benadryl and then put her on oxygen. I spent half the night reassuring her that she was not going to ICU. When she woke up she still had the rash and it had spread to her hands. I left and slept for awhile because I had hit my breaking point. (Thanks Mike & Lisa for the apartment, it was wonderful) Kirk said that while I was gone she had some applesauce and a little bit of cinnamon roll and milk. Also she had a little bit of fettuccine. When I got back up to the hospital she started gagging on the thick saliva and the fettuccine came back up. The PA came in and looked at the rash and ordered some cream for it. He told her that he would start gradually converting her medicine back to pills.
Her doctor just saw her and said that the rash might be graft syndrome. It happens sometimes when the counts come in really fast, which her has. Her counts yesterday were 1200 today they were 6400. He told her that she could go outside for a minute just to get her spirits up. She feels like she is taking steps backward and they have reassured her that she is not. Kirk told me that she has not pushed her pain medicine since 8:30 this morning. Hope tomorrow goes better. She wants so desperately to get out of here.
Dear Alyssa:
ReplyDeleteYou are almost there....Look close and you can see the light at the end of the tunnel.
After all that you have gone through you can do this last few days standing on your head....Hang in there kid. Sending you all my best vibes.....
M.M.